Saturday, March 10, 2012

Shrimp Feed...

It was great... he got to see lots of people that he hasn't seen in a very long time... and of course, everybody in Columbia is related SOMEHOW!! I love it- it's one big happy happy family!! Well, with their own problems sometimes... haha
My boy ate so much... holy crap- I was so surprised... they gave us a HUGE plate of steamed & fried shrimp with french fries on top and a huge garlic cheddar biscuit. HOLY COW... he ate all of the fried shrimp, most of the fries and steamed shrimp AAAANNNnnnnd a piece of pineapple upside down cake!!!!!!!!!!!!!!! He, himself was VERY shocked at the amount of food he ATE!! It was fantastic... but short lived. I watch him like a friggin hawk when he's out- he was tiring, so it was time to go. We stayed for about an hour. I am sure to him it seemed like many hours. It is hard for him to be comfortable outside home. The chairs were the metal fold up chairs, so we put my coat down for his 'bones' to sit on. All in all- it was worth the run to Columbia... had some laughs and lots of food.
Love and hugs to all.....

Exciting News!!!

Well, exciting for me!! Jimmy, Patrick and I are going to go out with 'the group', which is my late husband's friends and family, for a shrimp feed. I am soooo excited to get him out with us. It's so dang hard to control myself at this point. Patrick is excited as well. He was called into work, and he thought that he would miss the chance... so what does he do?!? He locks out the machine they were having problems with and headed home! LOL... does that tell you something?! WE ARE EXCITED!! They will ALL LOVE to see him as well!!!!!!! <3
Love and hugs to all.....

Long break

Man it feels like forever since I've had chemo, and it's great! A big huge thank you to Suzanne, my reiki masseuse for another amazing session!! Anybody needs any type of massage should definitely look her up first!!! Anyhow, this break feels so much like a necessity, although I also know we need to keep the fight up daily. Starting to force myself to do walks and a sort of stair exercise as well to make sure I don't just wither away. That kinda sucks but it must be done. And I've gotta shower as well today I believe, not that I'm that ripe yet, just feels kinda nice even though it feels like a huge job too at this point. It's either up 14 stairs and do it or use the stand up shower downstairs but can't get out of the water. Probably upstairs... Sooo for right now appointment wise I've got a root canal on the 13th to finish up and chemo on the 15th so yeah to that! Gonna be one hell of a week!! Thanks again to all following the journey and sending out positive thoughts and prayers I appreciate you all and will update again ASAP!!
J-Bird and that's the word, everybody knows that the bird is the word

Friday, March 9, 2012

Yesterday

I GOT TO SPEND THE WHOLE DAY WITH JIMMMMMMYYYYYY!!!!!!!! This has been one of the best days for me in a LOOOOoooooong time!!!! I let him sleep awhile in the morning- one reason is because I was on the phone with Directv- anyone else having trouble with these jokers?! i just had the DVR box replaced a few days ago and now again no signal?! WHAT am I paying 82.00 a month for?!!!??!!! AAANNNYYHOW... I got an finished with these jokers and got Jimmy's shots ready along with oral meds. After administering all meds, he said that he feels weaker every day. I told him that lying there in that bed and doing nothing is the main reason- the chemo will kick your ass, but if he doesn't get up a little every day - the muscles will go away, he will get weaker. SOoooo we walked outside and got some fresh air. Jimmy had a misstep and started going down... what does a momma do?- she grabs for him around the waist (I was behind him) and I think I saved his knees, but bruised his ribs...man :( He IS very weak... we will stay on him to get him on his feet more to begin the build up, we don't want him losing everything!! We were up and about for about 10-15 minutes. We sat out on the patio for a little when we finished walking around the house. He then came in and we put him in the recliner for a nap. He slept for a couple of hours and then it was time to rise and shoot (I know- usually rise and shine)... I gave him his afternoon subcutaneous sandastatin and we were getting ready for a trip to pier one imports... what a great store. We got 2 shelves for his room, trying to organize a bit. I love the shelves he picked out. That boy has good taste! Well, we got home and put the shelves together. Then he and Addy went back out for some other items and another shelf for her side of the room. After all, she needs organization too- she lives here basically. We have to make it feel like home all around.
Love and hugs to all.....

Wednesday, March 7, 2012

Spaghetti Dinner Flyer

Hey everybody, Paul here. Wanted to jump in quick and give everyone the opportunity to download the flyer for the upcoming Spaghetti Dinner fundraiser.

Word: spaghetti_dinner.doc
PDF: spaghetti_dinner.pdf

Hope to see everyone there!

Sunday, March 4, 2012

Thanks mom

Sorry to everybody that have been following along with my journey and I never post myself. I'm really thankful to mom for keeping everybody up with very detailed messages and stories on this site, thanks mom!!! And also I have been feeling pretty beat up these past couple of weeks. My wonderful fiancée has been such a gigantic support and makes things quite a bit easier for me!! So posting on my phone kinda bothers my eyes and head. But I feel like its getting to be better which is great. But I get a good break between now and next thing... Root canal!!! Whack attack but must be done, then two days later, chemo, then more side affects and fun!! But that's just me bitching and moaning, I'm hoping for this to get outta my system soon. The erbitux could still affect me up to a month from now. And thanks again folks that have followed along and prayed and sent great thoughts and donated to this cause. Tom moose thank you for your help recently as well! Hopefully I can post a little more often for everybody!!

Friday, March 2, 2012

today he gets unhooked

Well, today he gets unhooked from his 5FU. He will not have any added poison running through veins now until March 15th. YAY!! I sure pray to God that these 2 weeks prove to be pleasant for him. He needs this break.
Wednesday when we were leaving the cancer center it was raining and damp. yucky. I asked Jimmy if he was able to open the door, because the nueropathy was bad already, he said yes... WRONG! That 'bit' him!! I rushed over to finish opening it and got his butt seated safely inside.
When we got home from, the nurse to hook him up to 5FU was here waiting when we pulled into home. I grabbed all of the stuff to carry into house... 2 drinks, Jimmy's backpack, computer bag, lunch from McD's, my purse & thermos that housed Jimmy's meds for the day. (A LOT, HUH!?) I was in garage and noticed that Jimmy wasn't right behind me- I turned to see him still in the car. He was gasping for breath... OMG- I dropped everything and ran into house for a benedryl. By the time I got the pill and drink he met me at the door- we got him into his room and sat him on the bed- he was still gasping for breath. It sounds awful... and is so scary!! We turned his heat up a bit and it started to release- OH MAN... phew. I want to talk to Dr. DeGreen about just keeping that extra benedryl push after each treatment. Holy Cow!!
Anyhow, the nurse came in and got things going-
after she left Jimmy settled in for a reiki. He was OUT like a light!! I checked on him several times throughout the night and he was so sound asleep- a nice relaxing peaceful sleep. It wasn't until after 10pm that he awoke- He said that he felt really good- surprisingly good... thank you reiki!! :) I love that I can do that for him!! It made MY HEART SMILE!!
Ok- so, like I started out saying... let's pray that these 2 weeks are a welcome break for this boy!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :)
Love and hugs to all.....