Jimmy is now on a liquid diet- we will graduate to full liquids as tolerated. It's exciting when I see him eat.... now grant it there's not much that he can throw down, but still nice. He had half of an Italian ice- raspberry of course!! He will get stronger again... we did 3 loops around 8-Lime today, looked out the window at the colors of spring... was nice. He wasn't in the best of spirits earlier, so I was glad that I was able to go to work and get off early to be with him. GSV is the best place EVER!!
Ok, now on to tomorrow.....
COME JOIN ME FOR A SPAGHETTI DINNER. LOTS OF CHOICES, LOTS OF FOOD AND LOTS OF DESSERTS. AMAZING DESSERTS. We will also be auctioning off a cake made into a hiking boot that one of our wonderful cooks made for Jimmy and 2 paintings that another one of our cooks made and donated to Jimmy. SUCH WONDERFUL EMPLOYEES!! The caring and compassion... I love them all as well.
SOooooo you DON'T want to miss the chance at this wonderful all you can eat spaghetti dinner and the Chance at the boot or paintings, I wish that I would've taken pics of the paintings- I will put the boot on for you all to oogle over!!!
Tomorrow from 4-7PM.... come see us!!! Thank you in advance for your wonderful generosity and compassion for Jimmy. He is such a GREAT man- "I did good"... lol... I have to try to keep the sense of humor, right?!
Love and hugs to all.....

Good news

I emptied his ostomy bag before our walk around 8-Lime (we went around the circle TWO TIMES, by the way) and there was SOLID POOOOOO in there!!!! :)YAYAYAYAYAYAYAYYYYYYYYYYYYYY... I did the poo dance. This means we are still in the game, this means that the folfiri IS working- THANK YOU GOD!!
Still need to keep our eye on this and be ready for next step- BUT it is working. He has been walking and is on antibiotics for anything that 'might' arise. He has to watch who comes in to see him. They have a sign on his door that says for visitors to see nurse before entering. This is to protect the boy!! :)
Keep praying.... it's helping.
Love and hugs to all.....

Night at LGH

Well, if you need to rest and recoup- don't come here! man!
Jimmy took benedryl around 9:15 to get some solid sleep. We got him all settled in and Patrick left around 9:45- I changed into sponge bob PJs (nurses were jealous) and settled in for some TV. Turned TV off around 10:45. First alarm on ONE of his 5 IVs went off at midnight. Happened to be the pain pump. I called for nurse and then silenced the bell, so that Jimmy wouldn't be disturbed. They called for the IV team to come change his pain med. I stood at the side of his bed to silence the alarm each time it went off. Well, they got here and got it changed- left the room at 12:55am. Well at 1:05 the alarm went of again. I quickly jumped up and opened the door- YAY, they were still out there. They came back in and bled the lines- got the air out and were all done again. Back to bed around 1:20. Drift off to sleep and 2am benedryl time came quickly. Of course I want to see what they are doing- so awake again. That didn't take real long, back to sleep. Around 2:20am another bell goes off- this time it was his decadron pump. I stand guard (somewhat wobbly) and silence this one as well, (ha- ironically while I was typing this one of the alarms went off again at 8:55- pushed nurse bell on way to silence it I pushed nurse call... and OMG- while I was typing that sentence, his TPN alarm went off at 9:02) I THINK they are all over it now. How frustrating- I can't even have time to type about the night because the alarms continue! OK, back to story... Nurse gets this taken care of and back to sleep I go... or not, at 2:40 alarm again- same routine, I jump up and stand vigil until they fix the problem at hand. Back to sleep by 3:15am... ah nice! Short lived- 4:20 awakened by alarm again- I'm sure these nurses were like... REALLY?!, but I couldn't just keep standing there silencing these terrors. Back to sleep once again. Woke to someone in the room, and yes, of course I want to know what's going on. I awake to see they are preparing his meds... it's 6:45... wow, that was a nice sleep. I didn't get out of bed- I saw what they were doing and I turned over and went back to sleep. At 7:45 they came to take him for his obstruction series. SOoooo I decided to get a shower and change while he was out of the room. He was back before I was done with shower and all. It's now 9:10, he's been sleeping and I think I may nap now too... well, until the NEXT alarm goes off. I always thought that one came to the hospital to rest and recoup- REALLY?! ha
Well, now we wait for the Dr to come and let us know about results.

Tomorrow is the obstruction series.

WE NEED PRAYERS

We NEED this obstruction to pass. Please pray for the obstruction to pass.... PLEASE

Update

Well, Addy took Jimmy into LGH ER late afternoon yesterday. Being at work and trying to concentrate after getting Addy's text was pretty rough. BUT, I know he was in good hands there at LGH. He had bad pain and threw up his afternoon meds. They found a small obstruction. Now, we medicate and no food or drink until it is passable. I hope he doesn't have to get that dang NG tube again. This boy has been through hell and back for sure... but he keeps on plugging. he has so much love and support - it has to help him on this journey.
I will keep you all posted on the progress.

Spaghetti Dinner (all U can eat)

Just a reminder... I have tickets for sale or for others to sell for the March 24th dinner that my boss, Emily, and my cohort, George, are sponsoring for Jimmy. It is held at Ranck's United Methodist Church from 4-7pm. Cost is $9.00- adult/$5.00 - Kids/3 & under are free. The menu is quite extensive for a spaghetti dinner--- I think that all will be pleasantly surprised!!
Thanks in advance for your support. We will NEVER be able to thank everyone in this journey with us enough, EVER!!
Love and hugs to all.....