Chemo day came a day early this week, because when we made it last week- we were to get a bolus of magnesium & perhaps potassium on Friday because of Erbitux. He is no longer getting that Erbitux, as I had posted yesterday. PLUS, his counts are very good- what a strong boy!! So, he has from the time they unhook 5FU on Friday til March 15th free of chemo treatments. I hope this is a nice time for him to get his energy back and perhaps EAT MORE!! He woke up pretty nauseous this morning- so he didn't want to hear a thing about food. Last night his belly was rumbling all night- which he said then made it hurt, which in turn caused the nausea this morning.
We are in hour two thus far here at LCC. Since we are here on a different day (usually Thursday), we get to meet new people... nurses, patients and volunteers. It's not as packed in here today as it has been on occasion.
Today we brought a 'good' treat for our wonderful people here at LCC. Kat needed to better food to snack on- we usually bring sweets... you know, the yummy treats,(such as donuts, cookies, whoopie pies, girl scout cookies, etc)...but we felt the need to make it a 'better for them' treat today... after all, Melissa has to fit in that wedding gown!! :)
They tried not giving him the benedryl today- not sure how that came about, it was in the orders- but we fixed it and it wasn't even an issue- they were very sweet about it and just ran and got it.
After benedryl was given, Jimmy asked me what I do for 6 plus hours... Ha... well, I read, text, get on computer... AND watch him. CREEEeeeepy?! LOL- He just gave me one of his sheepish looks - anyone that knows him, knows it- head cocked down and off to side and he looked 'out the side of his face' at me with that tilted smile. Cute!! :)
Well, time to read some more.
Love and hugs to all.....
Wednesday, February 29, 2012
Tuesday, February 28, 2012
NEWS
I am so sorry to all - I went straight to work from his appointment. The news is not all bad... I teared up a bit this morning with the news. The DC (Damn Cancer) is not advancing at the rate at which it had been. The lymph nods are shrinking pretty good. To give it a number- Tracy said 50% gone. THAT'S GOOD!!!!!!!!!!!!!!! :) The tumor on the colon is SIGNIFICANTLY smaller as well... this is the reasons for his RP (real poops), because it has gone down far enough to allow RP through! THAT'S GOOD!!!!!!!!!!!!!!!!!!!!!! :) The colon and such has not forgotten HOW to work. THAT'S GOOD!!!!!!!!!!!!!!!!!!!!!!!!! :) The DC has not spread to lungs - his chest is clear - when I saw it months ago... it looked like a whole lot of grape bunches in there.
THAT"S GOOD!!!!!!!!!!!!!!!!!!!!!!!!!! :) The bad news... the liver has gotten 2 more lesions on it. :(
we are NOT giving up, we are regrouping and switching things up a bit. He will no longer be taking Erbitux weekly. He will switched to Folfurry as opposed to Folfox in 2 weeks. The Erbitux wasn't making a huge change and Jimmy wasn't tolerating it well. Hopefully he will now get some of his energy and appetite back. The Folfurry will then be coupled with Panatumamap (pardon the misspelling, I haven't had time to research this yet) in a month or so. This is similar to the Erbitux, along the lines of Rituxan. We will not be going for surgery as soon as we would like- but Dr. DeGreen (Tracy) is not taking that option away from us at this point.
Love and hugs to all.....
THAT"S GOOD!!!!!!!!!!!!!!!!!!!!!!!!!! :) The bad news... the liver has gotten 2 more lesions on it. :(
we are NOT giving up, we are regrouping and switching things up a bit. He will no longer be taking Erbitux weekly. He will switched to Folfurry as opposed to Folfox in 2 weeks. The Erbitux wasn't making a huge change and Jimmy wasn't tolerating it well. Hopefully he will now get some of his energy and appetite back. The Folfurry will then be coupled with Panatumamap (pardon the misspelling, I haven't had time to research this yet) in a month or so. This is similar to the Erbitux, along the lines of Rituxan. We will not be going for surgery as soon as we would like- but Dr. DeGreen (Tracy) is not taking that option away from us at this point.
Love and hugs to all.....
Saturday, February 25, 2012
not exactly what I was hoping for
Well, Jimmy talked to Dr. today- I was hoping for FANTASTIC news.... It's not bad BAD, but ugh :(
The mass on colon is significantly smaller- but he has more lesions on liver. Didn't say anything about lymph nods I guess.
We will talk to him more on Tuesday morning about switching up the chemo regimen.
:/
I mean, it's not horrible news.... but a little less than I wanted to hear....
The mass on colon is significantly smaller- but he has more lesions on liver. Didn't say anything about lymph nods I guess.
We will talk to him more on Tuesday morning about switching up the chemo regimen.
:/
I mean, it's not horrible news.... but a little less than I wanted to hear....
Friday, February 24, 2012
No news
Well, we have no news yet. Sorry, I was hoping to have something by now.
In other news, we had a GREAT DAY!! We left the health campus and went to McDonald's for lunch. Jimmy ate a cheeseburger and a few chicken poppers. The secret was, before we left the health campus, he swished with his BMX that numbed the sores in his mouth.
From McDonald's we went to Brent and Amy Hackman's to love up on Haylie. She is SOOOOoo adorable. Quite a head full of hair. We visited for about 30-45 minutes, the parents looked great too, by the way, and then we went to GSV. Visited there for a few minutes. Left there and went to Achenbach's Bakery where Jimmy got his Long John Donuts... his favorite right now! We even got a new item to try- a blueberry turnover.
We left there and stopped at Joe's Famous to see Ryan and Addy. HAD to buy some WONDERFUL wings for Patrick. Sat and spoke with them for a little while- Vickie (co-owner) came in while we were sitting and we got to see her for a few minutes. We then left there and went to pick up Zen and Damion (Jimmy's niece and nephew) for a weekend visit. By the time we got home- IIII was tired, I could only imagine how exhausted he was. I made sure to keep asking how he was and if he was ready to go... that Mom in me!! Ha
He is now getting a Reiki from Suz- MAN, he was looking forward to this!!!! She is such a wonderful person.. she brings everything to him and just ZONES HIM OUT!! :)
While I was typing this, Nancy - one of the trail angels that came to visit Jimmy, called to check on us. It was pretty cool to talk to her again. This boy is so loved... :)
Well, as soon as I hear anything - as I said - I will let you all know.
Love and hugs to all.....
In other news, we had a GREAT DAY!! We left the health campus and went to McDonald's for lunch. Jimmy ate a cheeseburger and a few chicken poppers. The secret was, before we left the health campus, he swished with his BMX that numbed the sores in his mouth.
From McDonald's we went to Brent and Amy Hackman's to love up on Haylie. She is SOOOOoo adorable. Quite a head full of hair. We visited for about 30-45 minutes, the parents looked great too, by the way, and then we went to GSV. Visited there for a few minutes. Left there and went to Achenbach's Bakery where Jimmy got his Long John Donuts... his favorite right now! We even got a new item to try- a blueberry turnover.
We left there and stopped at Joe's Famous to see Ryan and Addy. HAD to buy some WONDERFUL wings for Patrick. Sat and spoke with them for a little while- Vickie (co-owner) came in while we were sitting and we got to see her for a few minutes. We then left there and went to pick up Zen and Damion (Jimmy's niece and nephew) for a weekend visit. By the time we got home- IIII was tired, I could only imagine how exhausted he was. I made sure to keep asking how he was and if he was ready to go... that Mom in me!! Ha
He is now getting a Reiki from Suz- MAN, he was looking forward to this!!!! She is such a wonderful person.. she brings everything to him and just ZONES HIM OUT!! :)
While I was typing this, Nancy - one of the trail angels that came to visit Jimmy, called to check on us. It was pretty cool to talk to her again. This boy is so loved... :)
Well, as soon as I hear anything - as I said - I will let you all know.
Love and hugs to all.....
THE DAY OF TRUTH
Well, it's 11:30 on the day we have CT scan. He will soon drink his second bottle of barium vanilla smoothie- I don't care what they call it, what color they make it or what they SAY it will taste like... simply put it is GROSS IN A BOTTLE. I feel so bad that he has to choke this crap down. terrible!!
At 12:30 he has a knee X-ray to see what's up with the horrible pain. Addy said that last night around midnight he had another episode of that pain. We just can't pinpoint ANY SPECIFIC thing that is making this happen. So, it will be good to have a look inside.
The CT Scan is at 1:00. Our wonderful Dr. DeGreen will be looking for the results and call us. MOST doctors would make you wait until next week. I don't know where we would be without Tracy (Dr. DeGreen)... I simply don't want to know!!! He and the entire staff at LCC have been such a Godsend to us!! We really do LOVE THEM!!
Well, thank you to everyone that is crossing everything that they can- I will post as soon as I hear something.
Love and hugs to all.....
At 12:30 he has a knee X-ray to see what's up with the horrible pain. Addy said that last night around midnight he had another episode of that pain. We just can't pinpoint ANY SPECIFIC thing that is making this happen. So, it will be good to have a look inside.
The CT Scan is at 1:00. Our wonderful Dr. DeGreen will be looking for the results and call us. MOST doctors would make you wait until next week. I don't know where we would be without Tracy (Dr. DeGreen)... I simply don't want to know!!! He and the entire staff at LCC have been such a Godsend to us!! We really do LOVE THEM!!
Well, thank you to everyone that is crossing everything that they can- I will post as soon as I hear something.
Love and hugs to all.....
Thursday, February 23, 2012
2/23
well, he is almost done with his Erbitux for this week. These short days are kinda nice.
It is sooo beautiful outside today. I hope that he can enjoy a few minutes of it, that would be great.
Well, we go to the health campus tomorrow. He has an X-ray on his knees- because he has had MAJOR pain in them - he can't move in the morning- he has to hit his pain med pump every 20 minutes until the pain is TOLERABLE enough to get up. He needs it- JUST to even sit at the side of his bed. We were hoping that the bed would help with that pain more.
So, the knee X-ray is at 12:30 and then CT scan at 1:00- this CT will be a telltale of any changes in his disease. PLEASE GOD, LET IT BE SO!!!
He has a lot of pain in his mouth as well. It makes him NOT even WANT to try to eat. They are giving us BMX for that. He has had that in the hospital- he doesn't care for it, but if it is going to numb the mouth and maybe allow him to eat more- he will put up with it.
Soooo... keep your fingers, eyes, toes, legs- and whatever else you think you can- crossed for tomorrow.
Love and hugs to all.....
It is sooo beautiful outside today. I hope that he can enjoy a few minutes of it, that would be great.
Well, we go to the health campus tomorrow. He has an X-ray on his knees- because he has had MAJOR pain in them - he can't move in the morning- he has to hit his pain med pump every 20 minutes until the pain is TOLERABLE enough to get up. He needs it- JUST to even sit at the side of his bed. We were hoping that the bed would help with that pain more.
So, the knee X-ray is at 12:30 and then CT scan at 1:00- this CT will be a telltale of any changes in his disease. PLEASE GOD, LET IT BE SO!!!
He has a lot of pain in his mouth as well. It makes him NOT even WANT to try to eat. They are giving us BMX for that. He has had that in the hospital- he doesn't care for it, but if it is going to numb the mouth and maybe allow him to eat more- he will put up with it.
Soooo... keep your fingers, eyes, toes, legs- and whatever else you think you can- crossed for tomorrow.
Love and hugs to all.....
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